Still no lungs. I hate to write that. I feel as if you all have done your part and I'm shirking here. But I know I'm high priority on the list. And I know I only want those perfect lungs that will be meant for me so I wait with less or more patience.
Bad news. While waiting I contracted a fungal infection in my lungs...adds to the destruction of those already miserable twins. The fix is many months of a drug that costs more than my rent! But, alas, I had fundraising to fall back on and was able to say with only a small gulp, "Bring it on".
Good news. Then, two weeks into the regime, my team sent a letter to Nova Scotia to tell them that I needed the drug and that it cost the earth. Nova Scotia, after all my haranging to get them to spring for drugs decided to pay for this one! Hallelujia! Does anyone know if there was a change in policy regarding pharmacare?
So I'm unable to stay alone with the coughing fits that require help to get through. I have my mom with me just now and soon my friend Barb Luxton will come from Halifax for a stint. The wait cannot be much more, can it?
Thanks for sticking with me. I'm doing my best.
Sandra
About Me
- Sandra's Second Wind
- On May 8th this year I threw my twin lungs a NINE YEAR birthday. It was a farewell party actually as, after all these years of a great partnership, they are failing. The transplant team has offered me a second chance. Just like that! Very exciting for me. Statistics, it seems, had begun to tell that while most seconds were failures, those who were only failing because of BOOP (bronchiolisis oblitrans organizing pneumonia) were having almost as much success as first timers. It was on the exact day of my first transplant, in the middle of the birthday party that I heard I'd be listed. I'm stunned to find myself back on the fundraising trail.Friends, co-workers and perfect strangers were all so forthcoming and generous the first time around and raised enough money for me to go to Toronto with no worries except the obvious ones of health and personal care. Asking again is very hard but without you, I cannot do this. Already a gang of people have begun to think up and implement ingenious ways to collect money and in-kind support for my big adventure. I and my son Gaelen are very grateful.
3 comments:
Dear Sandra,
As part of your support team here, I must say again to you, you are doing your part with great patience and I admire you every day! Don't feel you are letting ANYONE down. We are all here with you wherever the journey may lead. It's just those super, special lungs that are just right for you are taking a bit longer than you thought but you always have done things the classy way and these are going to be some classy lungs when they arrive! Keep going and don't waste any, any energy on those of us on the sidelines. We are your supporters-you owe us nothing!!!
Dear Sandra,
It may seem like a cop out or just pretty cheesy, but since barb k's comments are pert'neer just what I was going to say, my comment is: DITTO!!!!!
I will add "YAY" to NS for the drug coverage!! About flippin' time they ponied up! And please to remove from your lexicon the word "shirking" because in NO way could that EVER apply to ANYTHING that you have done, K?
You are "Inspiration Woman" and may that fungal infection realize post haste who it is dealing with and get the hell out of Dodge (read: the twins)!!
And it goes withouot saying that you are "doing (your) best", so you need not say it : - )
Just keep picturing your next set of twins, all fresh and pink and full of themselves!!! Stay ready, 'cause it'll happen before ya know it!!
Love from Donna and Norena
My father lived in Nova Scotia and he passed away last year due to complications from his transplant. His name was Mike Parker. Did you know him? There was so much of his life that I didn't know about.
katherinelynneparker@yahoomail.com
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